Well. . .here is a little story about my amazing buddy, Osiyyah and how his loving family has learned so much about Down Syndrome to help this little boy grow up and have a happy, healthy and fun life. Our two families are very close, and I am overwhelmingly blessed to know a family like the Fishes and to see how much Osiyyah has learned over the past 7 1/2 years. "O" as we like to call him, is a very fun little boy to be around and he seems to have fun all of the time.
(Adapted from my friend Suriyah Fish's blog, "O's" older sister.)
Kim (Osiyyah's mom) was pregnant. When she was 24 weeks
along, we found out she was pregnant with twins. We were so excited. The
twins would be the 10th and 11th children in their family. From that
point on, everything progressed pretty much normally for a twin
pregnancy.
When she was 37 weeks along, we went to the hospital and she gave
birth to 2 beautiful babies. A boy and a girl.
Kim's husband was then told that "there was some bad news." Ok. "It looks like
the little boy has Down Syndrome." Well, that is not that bad at all we
thought! They didn't know much at all about DS, but quickly went to
learning. Kim's oldest daughter, Qadoshyah, took it up as her project and spent
her entire senior year of high school becoming an expert on Down
Syndrome. She wrote a thesis as her graduation paper and went on to
write an over 300 page book about Down Syndrome.
The girl was named Yophiyyah, which means The Lord is My Beauty. The boy
was named Osiyyah, which means The Lord is My Maker. Osiyyah was
hospitalized for 13 days, and was finally brought home.
Through Osiyyah's early months in life, there were many ups and downs.
He had trouble gaining weight and had to be on oxygen for a few weeks.
When he was 8 months old, his family found out about a special nutritional
supplement called Nutrivene-D, which is formulated for people with Down
Syndrome. Within 2 weeks of him starting on that, he changed
tremendously. He went from being a small, frail little boy who could not
sit up. To a very plump, alert and happy baby. The changes were
outstanding and to this day we are extremely thankful to have found out
about Nutrivene. He learned to walk at 17 months.
"O", as we like to call him, is such a HUGE blessing to our families. Our
life would be so boring without him! He brings so much joy to us. He is
almost always happy and inquisitive. We often tell people we think every
family should have a child with Down Syndrome, as they will really
light up your world! If everyone was as happy as he is, there would be a
whole lot more people smelling the roses and not as many complaints,
that is for sure!
Osiyyah and his twin sister Yophiyyah are 7 1/2 years old now. They both
really enjoy living on the ranch and like animals a lot. "O" really
likes to help out with anything on the ranch, but really likes to help
milk the goats. If he misses a milking, he tells his sister he missed milking "8
times!!'. It is hilarious. He likes to clean much more so than any
other kid. And one of his most favorite things for his sisters to
make him is fudge. He really enjoys dancing and singing, and gets
into it when everyone else is practicing. He also, as the rest of the
children in my family and their family, is a little "political junky" and talks about
how you should vote for Ron Paul and shouldn't vote for Obama or
Romney. He asks his siblings, "are you a Romney kid?" They say no. Then
he tells us that he's a "Ron Paul kid". He is so smart :).
While he does have some speech issues and someone that doesn't know him
typically can't understand everything he says, he can communicate with
all of us just fine through his own little language.
So, that is Osiyyah's story summed up. I love him so much and my life would be so different without him.
And that is why I am blogging for National Down Syndrome Awareness month, because of my amazing little buddy, Osiyyah.
Thanks for reading!
~Arael
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